Rheumatology Patient-Initiated Follow-Up appointments

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Patient initiated follow up appointment information leaflet for patients.

What is a patient-initiated follow up appointment?
A patient initiated follow up (PIFU for short) allows you to arrange follow up appointments as and when you need them. This puts you in control of your hospital follow up and enables us to create capacity for direct access to guidance when you most need it. Most patients with stable long-term conditions do not require regular follow up by the hospital team. Research has shown that the PIFU approach to care is not detrimental to your clinical care.

How do I book a patient initiated follow up appointment?
The service is quick and easy to use. If you feel you need to be seen, call the number on this leaflet and explain to the team that you are on the PIFU pathway and you need to be seen. The team will agree a suitable appointment date and time for you to have a consultation with a member of the Rheumatology team. If you have not heard back within a week, please call again for an update. Please note that the operator cannot give any clinical advice.

When should I call for a PIFU?
You should call the PIFU appointment bookings if you feel your medication is no longer managing your condition and have tried all the remedies found on our website.

Will you still be looking after me if I do not call for a PIFU?
Yes, we will contact you to arrange a follow up appointment if you have not contacted us after two years (depending on your condition). If you have any unmanageable flare- ups associated with your condition please visit our website at the first instance, however if this is not effective then please contact the Rheumatology Nurse Advice line: 01908 996602.

What if I am worried and change my mind about this style of management?
If you feel you wish to revert to regular hospital appointments, please get in contact with the PIFU appointment bookings and we will arrange this for you. We understand that patients may have concerns about not having regular contact with the hospital.

We appreciate and encourage feedback both negative and positive; we may be in contact in the future to gain feedback on your experience using this service.

Contact Details
PIFU appointment bookings (Central Booking Office): 01908 997050
Rheumatology Nurse Advice line: 01908 996602
Website address: Rheumatology Department – Milton Keynes University Hospital (mkuh.nhs.uk)